Tuesday, July 7, 2009

what's in a name?

i'm pretty bummed out today. the remicade is making a huge improvement, but i'm feeling worse than i did after my 1st infusion. of course, i'm blaming myself. but i think maybe i just need more time to heal. i mean, my immune system was attacking my guts for years while i threw useless drugs at it. maybe it'll take a few months to fix the damage. but i get impatient.

i wish ulcerative colitis had a better name. IBD isn't really much of an improvement. why didn't they name it after the doc, like Crohn's. I usually just tell people i have a disease like Crohns, and they can understand. I don't like to say things like "bowel" and "colitis" to like, my boss. it's like unnecessary embarrassment on top of the actual horrible disease.

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