i'm pretty bummed out today. the remicade is making a huge improvement, but i'm feeling worse than i did after my 1st infusion. of course, i'm blaming myself. but i think maybe i just need more time to heal. i mean, my immune system was attacking my guts for years while i threw useless drugs at it. maybe it'll take a few months to fix the damage. but i get impatient.
i wish ulcerative colitis had a better name. IBD isn't really much of an improvement. why didn't they name it after the doc, like Crohn's. I usually just tell people i have a disease like Crohns, and they can understand. I don't like to say things like "bowel" and "colitis" to like, my boss. it's like unnecessary embarrassment on top of the actual horrible disease.
When the moon is in the seventh house
2 days ago
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