end of doctor vacation

Went to see Dr. J last night -- I'm still unable to shake that wicked cold from the NIN show and I'm afraid Dr G won't let me Remicade it up before my FL trip if I'm still all sicky-sicky next week. She didn't like my lung sounds and gave me a 3-day zpak to clear it up. So I should be good to go next week. Woo hoo! I was in and out in like 20 minutes, it was the fastest Dr. J visit ever.

Went to Walgreens to pick up the antibiotics, and it was practically waiting for me when I walked in the door. Awesome!

Then this morning I had a quick trip to the lab for my montly bloodwork thinger. Again, it was relatively painless, in and out in 20 minutes. Amazing! I wish it was like this all the time.

So next week I have my first 10 mg/kg Remicade treatment, then no doc visits until October. And hopefully this finally puts the smackdown on my UC once and for all! (or at least for the rest of 2009, I'm exhausted and broke!)

A Day without Cats

is like a day without sunshine :)




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Mystery illness solved!

Turns out I did come down with a strange illness in nyc -- NINfluenza!

Gotta admit, that was brutal, though it is easier to laugh about it now that I know I wasn't just overreacting to some common bug. Seems like it's been giving everyone a rotten time, and NIN had to cancel a show last night due to it :( i got off easy, only sleeping for about 72 hrs straight.

Anyway, I am this close to begging Dr. G to give me Remicade NOW! I am in freaking agony! My colon is doing the cha cha and I'm afraid to leave the house. I went into the office today, and got trapped on a 2.5 hr con call. You can imagine how awful that was. I will spare you the gory details. It was a great call, friendly people, got alot of good feedback on the site -- however, I was praying they would finish, and they kept asking questions. It was torture. a nightmare. in fact, I think i've had this nightmare -- being trapped in my cube without being able to escape.

last night i cancelled plans to see my mom and sis, because i was too tired. tonight i'm cancelling my own plans for shopping, because i just need to be home. I'll probably end up cancelling my plans for tomorrow night too -- i just don't see how i can have any fun getting dressed up and going out dancing with the way I feel right now. I'd hate to get all the way to philly only to have to turn around and go back home. plus, i'm still not drinking, and what fun is it to hang out at the bar, not enjoying any jager or glow-in-the-dark vodka/redbull concoctions?

grossness

i'm bleeding alot less, but the volume seems to be the same. just um, mucus. ewwwww. i figure i'm either healing up, or running out of blood. either seems to be possible. i'm still coming back from the anemia -- dr. G told me to double the amount of iron i'm taking. but no more procrit injections, yaaay! i have this rotten cold that i think i picked up in nyc, i felt great sun and wed and progressively felt crappier until i slept from friday night almost straight thru monday morning. still felt like crap on monday, but i'm feeling better now. my nose is all sore from sneezing and i'm coughing gunk out of my lungs, but i can sit still and stay awake now. unlike monday, where i passed out cold on the couch as soon as i was done with work.

my muscles ache and i get tired easy, but i can deal. getting a little nauseous today. got this weird anxious feeling when i tried to do a little mall shopping after work. probably just the usual anxiety of not wanting to embarrass myself in public. i'm bleeding less, but i seem to have less er, control let's say. it's like back when this first started, constant needing the restroom - never knowing what was on the way. i worked as a cashier in a grocery store, on my feet for 6-8 hrs a shift, only allowed 1 10 min break every 4 hrs, which my manager decided when i could take. it wasn't a bad gig at all, but i'm glad we got to wear dark pants. i had more close-calls and almost accidents back then, before i was diagnosed. i just thought i ate bad sushi or it was just ibs or something. damn, that was 5 years ago already. feels like yesterday.

twitchy

aside from my vibrating descending colon, my legs have also gotten into the habit of feeling twitchy. not as extreme, like a buzzing vibrating, but more like pinches that make me have to move. The worst part is when i'm trying to sit still, or sleep, I feel like I have to keep moving and it's freaking annoying. It seems to have calmed down today, but the last two days were really rotten. I asked Dr. J and she said it could be related to the anemia, so hopefully we get that under control soon. I'm bleeding alot less, which is good, but I'd love to be bleeding not at all. Here's hoping sept 16th gets the job done. i can deal with having a cycle of remicade-induced remission that wears off right before the next infusion, kind of like a predictable cycle of suck, instead of this constant "what the hell is today going to be like?" unpredictable bullshit.

and oh yeah, i have a serious slurpee addiction. today after quest, i got the biggest freaking cup there was and filled it to the brim with sugary, icey, caffeinated goodness. figured if i'm twitchy anyway, might as well enjoy being awake too. much better than being twitchy and a zombie, now even though I still I can't sit still, but I think it's funny :)

mmmmmm, frozen braaaaaaaaaains

still buzzing

2.5 hrs later and no difference. well, maybe it feels a little worse, like a constant buzz.

guts on vibrate

*bzzzt* *bzzzt* I feel like i have a blackberry lodged in my intestines. This buzzing and bubbling goes up my whole left side and even my stomach joined in this morning. wtf is this? i'm gonna hit it with an anaspaz and see if that stops it, but this sucks!

stayed home yesterday and slept all day, still woke up tired. i'm not getting good sleep at night. Hubs says i whimper and thrash all night. the tramadol is not doing enough to cover the hip pain, and when i roll over i wake up. last night i woke up each hour, after not being able to settle down and go to sleep until like 1 am.

but this buzzing thing is just awful. i wish whatever alien or monster is stuck inside me would just tear through my body and escape already